A website set up to help people with a number of different medical conditions including the autoimmune disorder Alopecia Areata, which leads to sudden, patchy hair loss is asking for feedback from people with the condition.
They want people to visit the Alopecia Areata section of the website healthtalk.org for as long as they like, and then fill in a questionnaire about their experience. They say the questionnaire will take no more than about 10 minutes to complete.
The Alopecia Areata section of the website was put together by researchers at the University of Oxford and was designed to be as useful and user-friendly as possible, in order to give people with the condition a place to find out as much information as they can.
Last year, researchers appealed for people with Alopecia Areata to contribute to the site as it was being built; they wanted to interview people about their experiences. Today, the website is up and running and its Alopecia Areata section is comprehensive. It is split into five sections that cover what the condition is, medical help, treating and managing the condition, living with Alopecia and support.
What is likely to be especially helpful to people with the condition is the number of video interviews with people who have Alopecia Areata that feature on the site. There are also a large number of written accounts and audio clips from people with Alopecia Areata who talk openly about all aspects of the disease. It is unquestionably a terrific resource for the newly-diagnosed, and young people with Alopecia Areata are especially well represented.
The Health Experience Research Group or ‘HERG’ at Oxford University’s Department of Primary Care Health Sciences are responsible for the research that appears on the healthtalk.org and youthhealthtalk.org websites.
These sites have been funded by the National Institute for Health Research, as well as private donations, and aims to improve understanding of autoimmune disorders like Alopecia and Psoriasis in addition to helping others who have them. The Alopecia Areata section is likely to have been a big hit among sufferers as it helps to answer an array of common questions, including those about wigs, eyebrow tattoos, the emotional impact of the condition and much more. It also provides personal insights, allowing people to share their own stories and experiences of living with or supporting others with the condition.
Alopecia Areata in its mild form (where it causes patchy hair loss to the scalp only) is a treatable condition. Many Belgravia clients have enjoyed notable hair growth success and often full regrowth, through following personalised Alopecia Areata treatment courses based around topical applications of high strength minoxidil. However, its more severe forms Alopecia Totalis and Alopecia Universalis have notably poor success rates when treatment is attempted and no truly viable options are currently available though research is looking promising for the future. Belgravia, however, have enjoyed many notable success stories when it comes to Alopecia Areata treatment.
UPDATE: This research has now been completed and the testimonials are available to watch on the HealthTalk website.
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