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Teenager Starts Alopecia Areata Support Group in Portsmouth

The patchy hair loss caused by Alopecia Areata can be traumatic for adults to cope with, let alone children. But Portsmouth teenager Emma Turner, who was diagnosed with alopecia at 16 years of age, is using her experience to help support others.

Coping with alopecia areata

Teenager Emma Turner Starts Alopecia Areata Support Group in PortsmouthAlopecia areata is a fairly common hair loss condition which makes the hair fall out in patches. Although the precise cause is unknown, it is thought to be an auto-immune condition and it can be triggered by stress or sudden shock.

As with many alopecia sufferers, Emma, whose brother James plays football for Southampton, was confused as to what was happening when she first developed the condition:

From a young age we always joked about how I had a bit of a funny hairline, but we never thought anything more of it. When I was 16 I found a pound coin-sized lump of hair had fallen out and I had a little bald patch.’

‘It got bigger and another one appeared on the other side of my head. I showed my parents and we were confused by what was happening.’

Emma’s type of alopecia only affects the scalp, although other more severe forms – alopecia totalis and universalis – can cause hair loss of the head (scalp, eyebrows, eyelashes) or the whole body, respectively. Alopecia areata causes the hair follicles to lie dormant, waiting for signals from the body to resume normal hair production. This means that hair may grow back naturally although it is not known if or when this may happen.

Coming to terms with her diagnosis

Emma Turner Starts Alopecia Areata Support Group in Portsmouth With Mum, JackieEmma, who is training to become a veterinary nurse, says she has come to terms with her diagnosis, but has chosen not to explore treatment for alopecia.

She says, ‘The hair loss is unpredictable, so I lose it but then it can also start to grow back again. I was told I could go on steroids to try and help. Other than my alopecia there’s nothing wrong with me and I’m healthy, so I don’t see why I should take medication that could affect me in another way.

Although steroids are one option for treating alopecia areata, the side effects can cause discomfort. Another treatment option is the topical application of minoxidil, a pharmaceutical hair loss product medically-proven to treat genetic hair loss, which has also produced significant results in regrowing hair lost to alopecia.

Wigs are now Emma’s go-to option to cover her hair loss and make her feel more confident. She reveals, ‘I was really devastated when it all happened. I’m a young girl and of course love to dress my hair. But wearing a wig means I can do that and it makes me feel comfortable and get a boost of confidence from it. I can take my wig off still and always do when I get home.’

Providing support to others with hair loss

Emma Turner Starts Alopecia Areata Support Group in Portsmouth With Her Mum, JackieAfter finding a lack of support available when she was diagnosed, Emma, now 19, has set up a support group through the charity Alopecia UK with the help of her mum, Jackie Ward-Prowse, pictured here with Emma.

She explains, ‘…I want to give other people the same sort of confidence and that they don’t feel judged. For me, the biggest thing I felt after my diagnosis was how there wasn’t anyone to talk to who had gone through something similar.

Jackie said: ‘I’m so proud of Emma and how she is handling all of this. We want to start a support group for people suffering hair loss and if they want to come to our March meeting then they can.

For details of how to join Emma and Jackie’s alopecia support group, email: hants_support_group@alopeciaonline.org.uk


The Belgravia Centre Hair Loss ClinicThe Belgravia Centre

The Belgravia Centre is the leader in hair loss treatment in the UK, with two clinics based in Central London. If you are worried about hair loss you can arrange a free consultation with a hair loss expert or complete our Online Consultation Form from anywhere in the UK or the rest of the world. View our Hair Loss Success Stories, which are the largest collection of such success stories in the world and demonstrate the levels of success that so many of Belgravia’s patients achieve. You can also phone 020 7730 6666 any time for our hair loss helpline or to arrange a free consultation.


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5 Comments

1st February, 2015 at 9:20 am

Rosemary

Hi, I read that you were starting up a support group for hair loss sufferers from March. If the meetings are going to be taking place in the Portsmouth/Havanat area, I would be very interested in receiving details and attending. I have had Alopecia for several years and in the early days, was extremely upset by it. However, I've now totally accepted my hair loss and my life is just as good as before - I go sailing and everything. I therefore feel I can contribute a positive attitude as there is life after Alopecia. It's a great idea to meet up to discuss experiences and treatments as well as share good advice (eg. best places to buy wigs and get semi permanent makeup for eyebrows etc.) - and to let novices know that they're not alone ... Look forward to hearing from you.

1st February, 2015 at 9:24 am

Rosemary

Hoped to get details of the new support group. However,was unable to forward previous comment via email on the email address - hants_support_group@alopeciauk.org.uk. Has anyone else experienced problems?

2nd February, 2015 at 12:56 pm

Sarah Belgravia

Hello Rosemary,

That's great to hear. The group is actually being set up through Alopecia UK so we will pass your details on to them and hopefully they'll be able to give you all the information you need. Hope this helps.

2nd February, 2015 at 1:02 pm

Sarah Belgravia

Hi Rosemary,

We have contacted Alopecia UK to let them know and will update this page as soon as we receive a response. Someone will also email you the details too so that you can contact the group directly.

2nd February, 2015 at 2:33 pm

Sarah Belgravia

Following information provided by Alopecia UK, the correct email address is: hants_support_group@alopeciaonline.org.uk and we have edited the above post to include this.

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